So today is a rough update of my current situation and some thoughts. A quick snippet of advice.
Currently, I have been doing much better in general but I have also had some issues. For example, I had a large cyst rupture during a bike ride a couple weeks of go, and that was a nightmarish day. I limped into my anatomy lab (after puking in the bushes from the pain) and took my quiz. Quizzes cannot be made up and because I was already there, I was determined to complete it. My entire body was shaking and my mind felt like it was between a fog and intense clarity. You see, my mind had to be clear--pain killers have acute effects on my memory, so I had to have a clean system despite the horrendous pain I was feeling. And yet I felt like I still could not think straight. The drug-fog was absent, but the pain burned so much that my brain was having trouble directing its focus. However, I finished, waddled over to my TA, and gave her three sentences, "Hi, my name is Ash. Do you know what endometriosis is? Because I burst a huge cyst and about to pass out from pain--sorry I'll be missing the rest of lab today."
|What I undoubtedly looked like prior to the POP|
Unfortunately, since that cyst burst, I've been having intermittent issues with pain again throughout my whole* pelvic cavity. I'm thinking it's largely because of scar tissue agitation--I had a lot of neuropathic (nerve ending damage) from my endometrium. Likely it's still getting over the shock of having a cup of inflammatory fluid spilled all over everything. I really do hope it goes away. Regardless, I will continue to act as if it is gone. Because sitting around helps nothing. I have continued to bike around--when close friends question the wiseness of this (after all, my cyst burst from biking) I explain it like this: "that cyst needed to be gone. It was not supposed to be there. And if I hadn't burst it when I did, it would have just kept growing. It's better to get them gone ASAP. Even if it does hurt.".
What has honestly been the worse lately is the functional colonic disease (FCD). Apparently IBS is listed as a 'type' of FCD, but there is also a 'type' just called FCD. Which is your entire gastrointestinal tract is jacked. The neurons throughout my gut are perpetually 'confused'. I honestly do not have much bathroom woes (I am careful with my diet) but it seems nothing can help the two worst side effects I've been experiencing: dehydration and chronic nausea. I have been throwing up. A lot. A LOT this past month. I have gone an entire day where I could not keep anything down. Well, I actually could not get myself to even eat. My doctor thinks it could have been caused by the constant inflammation of my abdominopelvic cavity. To me, the cause is somewhat irrelevant, because the damage has been done. Right now, we've been experimenting with various neuropathic treatments, but it's very much a long game. Until then, pepto and me have become close friends. My only advice is, if you are having gastro-symptoms at times unrelated to endometriosis, you may want to get that checked.
Some good news though--I have not been to the doctors in about two months!! Yey! I need to make some appointments, but that is the first time in over a year where I have been able to say, 'I have not been to the doctor in quite a while.'.
Now, here is something perhaps a little more valuable than my personal updates.
With my gastro-issues, keeping a healthy weight has been pretty difficult for me. I've had issues of literally starving (as in my body was going into panic mode) and not fitting into my clothes. And I have had a lot of hormone-sick friends a long the whole spectrum of weight issues. One friend is very very healthy yet her hormones make it impossible to lose or maintain weight. It seems many diseases love to make it impossible for a person to maintain 'healthy weight' and force people into categories of 'too skinny/fat'. Of course there are many health concerns for one outside the 'standard' weight. I'm not even going to get into the societal mess of 'ideal body'. But i do want to touch on something.
|I'm not really this crazy! I know--loving|
my body does not magically fix all my problems.
But it does make them easier to bear. Self hate
would only be one more thing to worry over.
When diseases take away the majority of your control over your weight, it can be very easy to get caught up in your 'forced body'. "I'm not skinny enough, I'm not curvy enough, my butt is too big, my boobs are too small, I don't have abs, etc."--all these make up a huge line of thought that reigns through groups of sick people. The insecurities that medically related weight issues can cause is impressive and scary. And yet, you would think with how much their bodies are putting them through, it would be a personal drive to at least keep the mental attitude healthy. But society can make that really hard.
So here is what I am trying to say--if a disease has taken away physical control of your weight, maintain your mental control of how you feel about it. Because you deserve to feel love for your body. You deserve the right to minimize the negative strain that societal expectations add. You already likely feel physically terrible if you are sick. Or even if you're not sick but wish you looked better. Claim mental control and refuse to hate your body. I know that sounds silly, but it seems everyone always has something negative to think/say about their appearance. I have been overweight, underweight, and many inbetween. There has always been 'something' negative I could feel. So finally, I said 'enough is enough' and have made a sincere effort to love how my body is. It could be healthier, it could look healthier, but it's my body. It's what I have. And the less I love it, the more miserable I will feel in it.
I sometimes joke about wanting someone else's intestines, ovaries, boobs, whatever--I have even said I was learning to knit so I could knit myself a new gastrointestinal system. But, in reality, this is my body. If I want it to work with me and feel better, I need to start in my head and loving my body for what it is. I will constantly try to improve it and make it function/look better. Of course I do not 'love' the pain my body puts me through. But I need to love my body no matter how/where/what it is--otherwise I would never be happy. I can't make appreciation/love for my body conditional, because it will never be 'perfect'. So please, take a look at the inside and outside of your body. Make a decision now to love it (if you don't already). Because otherwise, you may never be satisfied, and you are adding an unnecessary burden to the ones you may already bear.