Wednesday, December 14, 2016

Under Construction


The Bedhead site is under construction! 


I very much apologize for the inconvenience.


Until everything is smoothed out over the next week, you may have some difficulty navigating the site. There are 'placeholder links' in the sub-navigation menu that are stubs at the moment. If there is anything you are struggling to find, please email me: Bedhead@Bedriddenhead.com, and I will email you the appropriate link. 

Thank you so much for your patience and continued support! I am greatly looking forward to all of the upcoming improvements, and I hope they are helpful and useful to you!

Wednesday, December 7, 2016

Health Care

I've been working on a series of posts to share in an orderly/semi-regular way these past few months. For those unaware, I am working to further my education and obtain a more advanced degree. Studying while working, dealing with my ever changing health, and trying to write a book, has kept me more busy than I know how to cope with! I am really looking forward to working with everyone that has expressed interest in the site though, and I am looking forward to the improvements they bring!

Despite the lack of time for more formal posts, I will be sharing some more informal information as often as I can. For Americans particularly, I am concerned about changes in health care and want to offer what information/support I can. If this looks familiar, I am sharing these words as often as I can.

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To everyone that has experienced anxiety regarding the political climate: Please take care of yourselves. Be kind to yourselves. Try to do something nice for yourself.

Many Americans with chronic conditions are frightened about the possible effects this election cycle will have on their health care. Regardless of who you voted for, the truth is that those with chronic illness and disabilities are often lost in the cracks for acceptable health care. You are not alone.

Take deep breaths. Take stock of your location and your state's current options/plans. Many communities have *free* charities/non-profits that provide assisting services. They can help you with your immediate needs. They can provide you information to help you with coverage for this upcoming year.

I cannot comfortably make any statements about what changes are coming for health care in America. I don't know what plans the House, Senate, or President Elect have.

I do know that changes are certainly coming. I can't say which or how or why--only that the current design does not have long term feasibility without restructuring and political cooperation. We cannot even know if the current design could work due to congressional starving, and we do not know if a future plan will work either. There is going to be change.

Change also means opportunities. You do not have to quietly surrender to a future without care. Look up your state/local representatives. Call them. Write them. Tell them of your concerns. Sign petitions that address your concerns. Use peaceful and safe methods to rally those around you to your cause. Try not to get lost in party lines. Whether your representatives 'represent' your politics or not, they were elected to represent *everyone*. Tell them how their policies and/or votes affect *you*.

You cannot succeed if you do not try. You can choose to reject helplessness by taking action. And if you struggle valiantly, you have won at least one battle.

Those who are not at risk for losing your health care, please be aware and considerate of risks others are facing. If you support change, try to advocate/support change that does not leave others without care. If you support those in office, but maybe not all their plans for health policies, let them know. It is empowering to be involved in the political process. And regardless of the current climate's effect on you, it is always possible to be on the other side.

My page/site/email have and always will be a place for people struggling. For those faced with challenges, illness, depression, and/or pain, I will do my best to offer comfort and information. I might be limited in what I can do, but I try my best to offer what I can to anyone that needs it. I do not care where you live, who you vote for, or who you support. I care about you and will do my best to pass on my knowledge and compassion.

Sunday, December 4, 2016

Request for Website Volunteers

I am looking for volunteers!


The site is under revision and is going to be redesigned/expanded. 


Anyone with possible interest in contributing to content of this website, short-term or long-term, please email me at Bedriddenhead. All time, web, and written contributions will be credited appropriately. Advice and critiques are also always welcome.


What Makes This Website Worth Helping:


This site has value as an information resource for individuals with chronic pain and illness. It is unique in its efforts to share both personal and general resources for medical information, using references and resources, while limiting medical jargon. 

Medical science uses its own language and terminology. Sharing resources in a personal, non-medical format can help arm people with valuable information for their well-being and physical/mental health. 


The current Bedriddenhead website design limits the ability of this site to provide information to relevant individuals. The current content is also too limited to a single individual (me). While my studies and work facilitate my work on this site, they also limit the time and effort I can put in. My background is in writing and science, not web design! I have also had some recent health and family issues, which have limited my time on the site. With help, I want to expand this site to make it more useful to others. 

This site has been an invaluable volunteer experience for me, and I wish to extend that opportunity to others. My physical limitations have impacted my ability to volunteer and contribute via more traditional methods. Yet this site has been a consistent platform for me to share my talents in a meaningful way. There are other talented writers, researchers, and bloggers I wish to include! 

While older posts are more personal, the main purpose of this site is to share scientific information in a variety of formats. To help inform individuals that are struggling with illness and pain (whether they have a scientific background or not). Anyone who is interested in furthering that goal, I ask you to please contact me.

The Current Need:


I am restructuring and improving this site and looking for anyone with interest/experience with:


  • Web Design
  • Graphic Design
  • Art
  • Editing
  • Writing
  • Medicine and/or Science 
Help is not limited to those items. If you are interested, please email me

Even if you are unable to make any commitment but are still interested in helping short-term, I appreciate any help that you can give. I understand everyone has limitations for time and resources. I understand this is not a major website. I just want to help the people that use it, and I appreciate any efforts put towards that end. 

I make this request with the mindset that any contribution will be appreciated. Even if you only have time to email me tips, I will appreciate and value the effort put into such an email. 


Goals for the website improvement include: 


  • Fixing site navigation and design
  • Redesigning appearance
  • Reviewing/editing existing content
  • Reorganizing existing content
  • Prioritizing informative/non-personal posts
  • Increasing post number/rate
  • Integrating more contributors (Repeat and Guest Contributors)    


Guest Contributions are Welcome:


Guest writers are being incorporated into the redesigned website. This includes stories and informative posts.

Stories about others' journeys are being incorporated as regular features in the future site. All submissions will be reviewed for approval, prior to publication. Those published will be credited and may choose how/if they wish to appear in their submission. Pseudonyms are welcome. If you are interested in sharing your story, but struggle with writing, please contact me for possible options.

For those interested in contributing as informative posters, one-time and long term contributors are both welcome. Those with education or careers in relative fields are especially encouraged to inquire. Any medical information is shared as non-medical advice, whether contributors work in a relative field or not. I welcome experienced/inexperienced writers, prior publication is not necessary. Cited references are necessary for submission. All submissions are reviewed prior to publication.

Again, the email for this website.


The Current Status of this Site: Why I am Seeking Change 


I am working on redesigning and repurposing this site, to better enhance its value as an information resource.

For those unfamiliar, this is a non-medical advice site, which aims to share health information, resources, and publications in layman's terms. Some posts review research, some give tips on how to prepare for appointments. This site has been a wonderful way for me to contribute to the chronic illness and chronic pain communities. Chronic illness, endometriosis, IBD, asthma, CTDs, anxiety/depression, and pain communities have all been valuable groups for this site (and myself). 

Helping people affected by pain and/or illness has always been the goal for this website. 


I started with the (realistic) goal of reaching or helping just 'one' person. I wrote about my experiences and thought it might make someone feel less alone. After learning more about others, talking with readers, and switching to a more informative approach, I eventually met that goal many times over, and I began to appreciate what an amazing resource a website like this can be. 

This website has allowed me to have an impact I would not have had otherwise. Even during times of sickness and disability, this site has given me the opportunity to reach out to and inform others like me. Working on these articles, sharing my story, and communicating with readers, is such a privilege, as well as an opportunity.  

I can't fulfill these goals alone.


Writing this post, I actually had to fight a strong urge to use my time on one of the dozen posts I have been working on for months. Though if you have been checking the site, you'll notice why I say 'working on' not 'posting'. I have done my best to maintain the Facebook Page, as well as returning messages, emails and phone calls for help, but the site has definitely suffered from lack of activity. My work, school, and health issues are a both a resource and drain for the site. I feel overwhelmed with the resource I started. I want to change this.

I wish to expand the potential this site has. I want to make this site a more usable and valuable resource. I wish to make this site everything it can be; for those who visit, read, write, or subscribe, anyone who has found value in this site, I wish to make it better. I don't want to help just 'one' person--I want to help anyone who chooses to visit this site. Whether through google or shares, I want anyone who comes here to find value in this site. I want to make it time well spent. And I recognize there is only so much I can do to make that happen.

Anyone who has interest in this goal, I would love to hear your ideas or possible methods of contribution. This site has been a precious opportunity for me to contribute to various illness and pain communities and individuals. I love volunteering, and my physical limits can sometimes prevent me from doing more traditional projects. While there are many who do far more work than I, the efforts I have put into this website has been a way for me to help.  If anyone else thinks they could find value in such a contribution, I would love to involve you this site's future. 

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Contact me at bedhead@bedriddenhead.com

About The BedRiddenHead

I want to be happy. And this site is about that chance. How to strive to thrive in the body I've got and maybe turn my experiences into something worthwhile.

This site aims to help educate and reach out to people all over that struggle with pain or illness. To try and make something helpful. I work as a medical research writer, my background is in neuropsychology and biology, and I want to share what I learn in a way that is easy to understand. I am not a doctor. I'm definitely not your doctor. I am just some lady who wants to make someone's (anyone's) life a little bit better. Whether you have endometriosis, a chronic injury, a struggling friend, or just want to learn something new, I hope to make a place that has what you are looking for.

Thank you for stopping by, I wish you strength in your health and happiness.